Whether you are concerned about emergent memory problems in yourself, or have a loved one who has recently received a diagnosis of Alzheimer's, you may have lots of questions when it comes to this very common, very widespread disease. In this article, we present to you some of the best and most comprehensive resources available online for Alzheimer's disease, from onset symptoms to end-stage care. Alzheimer's can be a frightening and difficult topic to explore, but we hope that you will find, in the resources below, some websites and organizations that can provide you with the information, support or comfort that you may be looking for.
One of the first and best places to start is the website for the Alzheimer's Association, which contains a comprehensive overview of the disease, as well as sections devoted to advocacy, treatment and research. The Alzheimer's Association is one of the largest national organizations devoted exclusively to Alzheimer's, and in addition to their website, they also have a toll-free helpline that is available 24/7 at 1-800-272-3900. The Alzheimer's Association's California Council has also developed "best practice" guidelines on care, treatment and education for the disease, which can serve as a useful roadmap for families who have a loved one with Alzheimer's.
For in-depth information on Alzheimer's, you can visit the National Institute on Aging's Alzheimer's Disease and Education Referral Center (ADEAR). In addition to information on symptoms and diagnosis, the ADEAR site contains some of the most comprehensive and up-to-date information on Alzheimer's research and clinical trials on the web. ADEAR can also be reached via telephone at 1-800-438-4380.
Excellent, detailed information on all aspects of Alzheimer's can be found at the New York Online Access to Health or NOAH, containing information on everything from symptoms to treatment, as well as contingent concerns such as legal and financial issues, and caregiver support. Caregivers also have a number of resources devoted to them online, including the Family Caregiver Alliance, which maintains a number of fact sheets on various conditions, including Alzheimer's. The fact sheet includes details about the disease itself, options and warnings regarding treatment, and strategies for caregiving during each progressive stage of the disease. Other resources for caregivers include The National Alliance for Caregiving, and the Caregiving Resource Center at the American Association of Retired People.
As you can see, the internet is overflowing with information on Alzheimer's that can help you on your journey with this disease, whether it be a search for details on symptoms and diagnoses, or an attempt to connect to other families coping with similar circumstances. We hope that the resources above can set you well on your way toward being more informed, more empowered, and more able to deal with the effects of Alzheimer's on your life.
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